To date Amanda has spoken to one other parent, a woman from Georgia in the US, whose daughter had the condition and died at the age of two.
At the heart of the controversy is Keyi Rubath, a 19th-Century guest house built in the 1870s by Mayankutty Keyi, a wealthy Indian merchant from Malabar (modern-day Kerala), whose trading empire stretched from Mumbai to Paris.Located near Islam's holiest site, Masjid al-Haram, the building was demolished in 1971 to make way for Mecca's expansion. Saudi authorities deposited 1.4 million riyals (about $373,000 today) in the kingdom's treasury as compensation, but said no rightful heir could be identified at the time.
Decades later, that sum - still held in Saudi Arabia's treasury - has sparked a bitter tussle between two sprawling branches of the Keyi family, each trying to prove its lineage and claim what they see as their rightful inheritance.Neither side has succeeded so far. For decades, successive Indian governments - both at the Centre and in Kerala - have tried and failed to resolve the deadlock.It remains unclear if Saudi authorities are even willing to release the compensation, let alone adjust it for inflation as some family members now demand - with some claiming it could be worth over $1bn today.
Followers of the case note the property was a waqf - an Islamic charitable endowment - meaning descendants can manage but not own it.The Saudi department that handles Awqaf (endowed properties) did not respond to the BBC's request for comment, and the government has made no public statement on the matter.
That hasn't stopped speculation - about both the money and who it rightfully belongs to.
Little is known about the guest house itself, but descendants claim it stood just steps from the Masjid al-Haram, with 22 rooms and several halls spread over 1.5 acres.Doris Ludlam, 80, Bridget Bourke, 88, Irene Crookes, 79, and Ethel Hall, 86, were inpatients on orthopaedic wards where Campbell worked in Leeds in 2002 and developed unexplained hypoglycaemia.
Campbell denied any wrongdoing and over the past 14 days, the Court of Appeal has heard from both his lawyers and also the Crown Prosecution Service (CPS), who opposed the appeal.He unsuccessfully appealed against his conviction in 2009 and applied to the Criminal Cases Review Commission (CCRC) in 2011, who said previously that the prosecution had relied on "wholly circumstantial" evidence.
The CCRC referred the case to the Court of Appeal in London four years ago.The appeal hearing finished on Friday after closing statements from Michael Mansfield KC, for Campbell, and James Curtis KC, for the CPS.